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"No act of kindness,

no matter how small,

 is ever wasted"

- AESOP
                   

 

  GoodSearch: You Search...We Give!

 

 

  You can join the TNSSG group or our cause on FACEBOOK

 

 

 

The link below will take you to a preview of a book published to honor Dr. J. Noonan's (March 18th, 2008) Lifetime Achievement Award. 68 pages of pictures and words of congratulations honoring Dr. Noonan. Thanks to the generosity of many of our families The Noonan Syndrome Support Group, Inc. will be represented at the award ceremony, at which time we will present her with her book ' A Tribute to Jacqueline A. Noonan, M.D.' By Family and Friends of The Noonan Syndrome Support Group, Inc.

This book, is available in either hardcover or softcover, TNSSG, Inc. will receive $3.00 from each book purchased.  Here is the link to purchase a copy of ' A Tribute to Jacqueline A. Noonan, M.D.'  

 

By Family and Friends...

KNOWLEDGE IS POWER - (SILICONE BRACELET)

We are having a bracelet fundraiser to raise funds for the Noonan Syndrome Group.  These funds are greatly needed so we encourage all of you to participate!  We will be selling the bracelets for $2.50 each. You are more than welcome to purchase any quantity that you want for yourself and family.  The silicone bracelets are imprinted (debossed) on the outside as picture.

 

and on the inside

 

 

Show your support, order yours today

 

Tiny Titan, Journey of Hope By Ann Yurcek

 

 

                                                                       Place your order today.

 

  • The Noonan Syndrome Bumper Sticker. 3" x 11 1/2 " inch Bumper Stickers. Cost $2.50 each + $2.00 S&H

  •  

 

Niki Hershey raised money and awareness for our group. She sold these bumper stickers (above) to family and friends. 

The price of the bumper stickers are only $2.50 each. All proceeds will go directly to TNSSG, so PLEASE, PLEASE order as many as you can pass out to friends and family members!!! An additional $2.00 will need to be sent along with your orders for shipping costs. (not 2.00 per sticker, just 2.00 for the order).

Thanks so much, Niki Hershey       Joshua-9 Chase-2 1/2(NS) Jagger Cole-20 months

 

We have a few of these left, so please email me if you would like to order a few. info@noonansyndrome.org

  • The Noonan Support Group Pin - This pin is shaped like a heart and within the heart is a box with the group’s logo. The pin is set on a gold background. $2.00

Go to order form

Place your order today.

 

  • Noonan-syndrome Characteristics Development, and Intervention - by Dr. Stephen von Tetzchner, Center For Rare Disorders, The National Hospital, Norway: This book is a comprehensive guide that covers the many aspects of Noonan syndrome. $20.00 (Book 150 pages)

 Go to order form

Place your order today.

  • Clinical Genetic Studies in Noonan Syndrome by Ineke Vab der Burgt $25.00 (Book 128 pages) Reprinted with permission in the USA

The Noonan Syndrome Support Group, Inc. would like to first thank Dr. Ineke van der Burg for giving us permission to reprint 'Clinical and Genetic Studies in Noonan Syndrome' , this 128 page book is a must read for anyone affected by Noonan syndrome. We would like to also thank Anne de Groot, who obtained permission for the group to reprint this book.

               Go to order form

Place your order today.

  • BOOK: Noonan Syndrome A Parents Guide- Excellent booklet written in easy to understand language, produced by The Noonan Syndrome Support Group, Inc.(1 Free with each parent package) - Additional books $4.00 (Book)

 Go to order form

Place your order today.

  • BOOK: Cómo Comprender El Síndrome De Noonan Guía Para Los Padres- Preparada Para El Grupo De Ayuda Del Síndrome De Noonan (Noonan Sydrome Support Group, Inc.) (1 Free with each parent package) - Additional books $4.00 (Book)

 Go to order form

Place your order today.

  • BOOK: The Many Faces of Noonan Syndrome Excellent booklet with photographs of people of various ages affected by Noonan syndrome. Produced by The Noonan Syndrome Support Group, Inc. -$4.00 (Book)

 Go to order form

Place your order today.

 

  • If you've ever wanted to crawl in the closet with an OREO - Tips for parenting a child with special needs- The Perfect book for the caregiver with major challenges, but little time or energy to read a bigger book. By Martha Kate Downey $10.00 (TNSSG, Inc. receives the proceeds from sales of this book)

 Go to order form

Place your order today.

Hit Counter

05/08/2008

The Noonan Syndrome Support Group, Inc.,
P.O. Box 145
Upperco, MD  21155, USA
1-888-686-2224 within the USA
or 410-374-5245
info@noonansyndrome.org

* The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization. Contributions are tax-deductible to the extent allowed by law.
For more information, please call (410) 374-5245 or 888-686-2224