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On hearing the diagnosis of Noonan syndrome the question most asked 'what is the life expectancy of a person with Noonan syndrome?' My official answer used to be 'that would depend on the severity of the heart condition affecting the person with Noonan syndrome.' I have learned that the question of life expectancy is not so simple... the pages that follow are a tribute to our Angles. Shauna Marie Palmer : Glen Thomas Bondurant : Tanela Durbin These are our Angeles These Angels walked before Their journey of strife no more They touched our hearts with their pure light
These are our Angels The tears we shed shine bright Offering little solace in our darkest night Then we remember our Angels pure joy
Of the hearts they touched, it is our journey no more
These are our Angels Thank you for your kindness and generous support! * The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization. Contributions are tax-deductible to the extent allowed by law. |
Restarted 10-13-2009 |
