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On hearing the diagnosis of Noonan syndrome the question most asked  'what is the life expectancy of a person with Noonan syndrome?'

 My official answer used to be 'that would depend on the severity of the heart condition affecting the person with Noonan syndrome.'

 I have learned that the question of life expectancy is not so simple... the pages that follow are a tribute to our Angles.

Shauna Marie Palmer : Glen Thomas Bondurant : Tanela Durbin

These are our Angeles

          These Angels walked before

                   Their journey of strife no more

                           They touched our hearts with their pure light

 

 

           These are our Angels

                  The tears we shed shine bright

                      Offering little solace in our darkest night 

                                 Then we remember our Angels pure joy

 

Of the hearts they touched, it is our journey no more

 

These are our Angels 

Thank you for your kindness and generous support!
* The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization.
Contributions are tax-deductible to the extent allowed by law.

Community

We have several ways to interact with people affected by Noonan syndrome.   Take a look and join us...

  • Community section (similar to popular networking sites) where members can meet other members, discuss important topics and share in all of our amazing stories. Request Membership

Members  Log In
Questions Contact Martha G.

  • Be a part of our Group on FaceBook

 The Noonan Syndrome Support Group, Inc. (TNSSG)

  • Visit The Noonan Syndrome Support Group, Inc. site on Facebook, REMEMBER to CLICK Like IT

 

  • Talk to Others via Email:

We operate a list service (discussion forum). If you would like to subscribe, and be a part of our family, send an e-mail to listserv@home.ease.lsoft.com with only the following command in the message body:subscribe noonan-syndrome

 

 

2007 Family Meeting

 You Can Give      

                      

"No act of kindness, no matter how small, is ever wasted"

- AESOP

 

 

The Noonan Syndrome Support Group, Inc.,
P.O. Box 145
Upperco, MD  21155, USA
1-888-686-2224 within the USA
or 410-374-5245
info@noonansyndrome.org 

Thank you for your kindness and generous support!

* The Noonan Syndrome Support Group, Inc. is a 501 (c)(3) tax exempt, non-profit organization. Contributions are tax-deductible to the extent allowed by law.
For more information, please call (410) 374-5245 or 888-686-2224

We are updating our web site....Stay tuned for more information

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